Today is the day we recognise the fight waged by our fellow citizens suffering from rare diseases.
Most of these are serious diseases that have a detrimental effect on patients’ quality of life, on their everyday lives. The overwhelming majority of those afflicted with a rare disease need care all their lives, on a continuous basis, whilst a large number depend on others for their entire lives, something which constitutes a major emotional, social and economic burden.
It is essential that both society and the state raise awareness on how to deal with the problems faced by our fellow citizens suffering from rare diseases, because the principle of solidarity is the most important value of our society.
Perhaps with the efforts of all, in particular those of science, tomorrow will be a better day for all those suffering.